New York Times Article on Apps and Autism

Here are a few good resources included in yesterday’s New York Times article on apps for children with autism.

Shannon Des Roches Rosa, a parent, has developed iPad Apps for Autism which includes reviews and recommendations for language apps as well as categories including art and music.

SNapps4kids.com, developed by the Easter Seals, lists more than 700 apps and to date, offers about 60 reviews and categories which are organized based on skills learned rather than  disability or diagnosis.

iAutism.info  is a database which  contains over 400 apps for iPad/iPhone and nearly 70 for Android.The main reviewer is also a parent of a child with autism.

Read the article for some more specific recommendations.

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Prentke Romich launches an app.

Got notification through their Facebook page that PRC is entering the app world with Language Lab: Core Words which is now available on iTunes.  This app is designed to help teach the use of the AAC device and to introduce high frequency core words.  A more complete description can be found here.

 

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Consulting an SLP Before using an iPad for AAC

This  interview with Jordan Sadler, owner of Communication Therapy P.C., in Chicago is worth a read as it offers some key considerations with respect to the use of the iPad as an AAC device.  Notably, Ms. Sadler offers an important reminder about the importance of training and support as parents introduce the iPad and apps which have been promoted as beneficial to students with special needs.  This reminder was absent in the widely viewed 60 Minutes segment.

As she says,

“Everyone has gotten the message that this device can be beneficial to children with special needs, but then they purchase an iPad and ask, “Now what?” SLPs can play a significant role in answering this question.”

Even better, consult an SLP before you decide to make the purchase if you intend to use it primarily as an AAC device.

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60 Minutes Segment on the iPad and Augmentative Communication

It is great to see some mainstream coverage of augmentative communication, particularly through a media outlet as broadly known and respected as 60 Minutes.   For too long the AAC community has been unable to dispel the common misperception that nonverbal autistic people  are so low functioning that they would be disinclined or unable to communicate effectively even if given the tools to do so.  In fact, it was surprising that Leslie Stahl’s segment seemed to imply that prior to the iPad, there was no such thing as a touch-screen speech generating device (SGD).

In describing her autistic child, one parent in the segment says “You know there was more in there and you didn’t know how to get it out. ”  Now you do know, thanks not only to a great product like the iPad and applications like Proloquo2Go, but also thanks to Apple’s marketing power and the general accessibility of Apple products.  Once upon a time (even as recently as last year), an SGD was known as a “medical device,” cost thousands of dollars and was funded only by insurance companies or school districts, often after protracted discussions involving lawyers.   The iPad has brought AAC mainstream by making it cool and affordable.

In addition to demonstrating the effective use of the iPad as an AAC tool, the segment mentioned that there are apps which are designed to aid in other areas including identifying emotions and maintaining eye contact.   It was good to see a mention of these additional uses for the iPad however this reviewer could have done without the speculation that its popularity among the autistic population is their preference of machines to people.   In spite of the stereotype, the fact is that many with autism would love to talk with people–they just can’t get words to come out of their mouths.

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Autism Speaks Supports Study of Augmentative Communication and Spoken Language

Autism Speaks recently announced  ten new research grants, including a few with a focus on nonverbal individuals with autism. In the announcement, Dr. Geri Dawson, Chief Science Officer, pointed out that nonverbal children are among the “relatively underserved populations” which also include preschool students in minority communities and working adults with autism.

Of particular interest is a study on augmentative communication intervention aimed at improving the acquisition of spoken language by nonverbal school-age children with autism.   The study, to be conducted by Dr. Nancy Brady of the University of Kansas, is a welcome further exploration of a potential bonus effect of AAC described here last week.

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Schlosser-Wendt Study on AAC and Speech Production

If you are like me, you’ve heard warnings that the use of augmentative communication may hinder the production of speech in your non-verbal child.  There is no evidence that this is the case.  In fact, there is research which suggests that the opposite may be true.

In a research summary called Effects of Augmentative and Alternative Communication Intervention on Speech Production in Children with Autism: A Systematic Review, published by the American Journal of Speech-Language Pathology, the authors conclude that there is no evidence that AAC hinders speech production in children with autism or PDD-NOS.  In fact, they reported that there was evidence of modest gains in speech production in most cases they observed.  The authors indicate that more research is necessary in this area and their summary also serves as reminder about the purpose of AAC.  From their conclusion:

The potential lack of natural speech production gains, as evident in some studies, does not negate the value of AAC interventions. In fact, gains in speech production ought to be viewed as a BONUS of AAC interventions rather than as an expectation per se.

So, to summarize:

1) There is no evidence that AAC hinders speech production.

2) There is evidence that AAC may help to increase speech production.

3) The goal of AAC is to get the child to communicate – with or without speech production.

Photo courtesy of Lance Neilson’s Flickr Photostream

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The Steve Jobs Legacy from an Autism/AAC Perspective

Back in March, Fox News asked if the iPad is a miracle device for autism.   Yesterday, after the announcement of the passing of Steve Jobs, autism parent and blogger Kristina C. offered up thanks to the tech giant because of the great benefit that her son has gained from the iPad in spite of the fact that he did not use it as an augmentative communication tool.  Is it too early to speculate on the Jobs legacy from the perspective of those of us who care for people with autism and others with communication challenges?

Steve Jobs’ genius will remain evident in the products that he conceived and brought to market as well as future iterations of these products.  The iPad will continue to serve as a tool to support some of the most basic needs of our children with autism–still, it may make sense to proceed cautiously and resist the temptation to get caught up in the excitement.

The Fox article quotes Steven Shore, author of  Understanding Autism for Dummies, as saying that the iPad might be the  difference between communicating with the outside world and being locked into a closed state.  He goes on to say that it might be the first of several gadgets that actually free a child from some effects of autism.  I’d like to get a better sense of what he is talking about here. After all, although my son has taken a liking to a couple of cool iPad apps, I’ve found that an $8 battery-operated massager and a talking Wiggles book work very well to keep him (temporarily) soothed and engaged.

Certainly the advent of communication apps, like Proloquo2Go is a promising development.  However there are still kinks to be worked out. A speech-language pathologist whom I like and respect says that students and school staff find the layout very confusing, making it difficult to find and remember where the vocabulary is located. You don’t currently get the level of customer support that you will from vendors of AAC equipment, however I expect that support will improve over time. My guy can effortlessly navigate his more expensive piece of AAC hardware, so while he is getting the feel of the iPad he is not currently using it to communicate.

Kristina C., in yesterday’s blog post says that the Pictello app has allowed her son Charlie to listen to social stories, personalized picture schedules and picture books.  Although Charlie is not using an AAC app, Kristina points out that she can get a sense of Charlie’s thinking by noting the pictures that are attracting his attention.  That’s really great.  Our plan, which was reinforced at the 2011 Forum, is to continue to expose our son to the iPad in school (and soon at home as well) for the purpose of allowing him to get the “feel” of how it functions and to expose him to new applications (including AAC functionality) as it makes sense to do so.

RIP Steve Jobs. Thanks for all of the stuff you made.

Photo Credit: Sean MacEntee’s Flickr Photostream

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AAC-RERC White Paper on Mobile Devices and Communication Apps

During the time that I was organizing the 2011 Forum, AAC-RERC released a white paper on mobile apps for AAC which can be found here.  It’s a  cautionary and timely read given the increased availability of mobile apps and devices as a more affordable alternative to hardware-based solutions.

The authors note that a general increase in awareness is a good thing and encourage continued research to match mobile solutions to the needs of individuals with communication challenges.   They caution that there is  limited evidence showing the effect to which mobile technologies and AAC apps can improve the functional communication and quality of life of people who use them.  Additionally, as apps are mass-marketed, there are concerns about technical support, quality control, customization and abandonment if  tools fall short of expectations. Their reminder to keep a “holistic perspective of AAC”  reminds me of Kevin Cohen’s remarks on our Forum’s closing panel.

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AAC in Action: Jeremy Sicile-Kira

I’ve enjoyed organizing the 2011 conference because I have already had the opportunity to speak with many parents and professionals who have offered helpful perspectives that I can apply to the challenges faced by my own child.

A while back, I spoke with Chantal Sicile-Kira, a well-known speaker and author, and the parent of an inspiring  young man.  Check out this video and you’ll see what I mean.

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Congrats to Anne Holmes

Congratulations to Augcomm New Jersey 2011 speaker, Anne Holmes, on her appointment to Chair the Panel of Professional Advisors for the Autism Society.  From the Eden announcement:
Eden Autism Services is pleased to announce the appointment of Anne Holmes, Chief Clinical Officer, M.S., C.C.C., B.C.B.A., to the position of Chair of the Panel of Professional Advisors for Autism Society.  
 
The Panel of Professional Advisors serves in an advisory capacity to the Autism Society Board of Directors.  The Panel sets the standards for Autism Society’s Option Policies that governs its practices.
As Panel Chair, Holmes heads a group of nationally recognized and respected professionals who are among the leading minds in the autism professional community.  

Holmes has more than 35 years experience working in the field of autism.  She currently serves as Chief Clinical Officer at Eden Autism Services where she is responsible for monitoring standards of care including staff development and student/participant outcomes by means of a comprehensive quality management system.  She is the primary consultant to hundreds of families, schools, and agencies locally and nationwide, and is the supervisor of Eden’s clinical evaluation and consultation services.  

Holmes received her Master’s degree in Speech Pathology from Douglass College and holds a Certificate of Clinical Competence as well as New Jersey licensure, and is a Board Certified Behavior Analyst.

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